The Citizens’ Council on Health Care has released a new report that demonstrates evidence and concerns about the extension of eugenics into State newborn screening programs. Today, many States are expanding testing, creating State genetic registries and using newborn blood and DNA to develop new tests for more comprehensive genomic screening of newborns at birth.
“To protect every American’s right to self-determination, genetic privacy, and DNA property rights, it is time to require informed written parent consent for all facets of the newborn genetic screening program, including storage and use of genetic test results and newborn DNA,” said Twila Brase, president of Citizens’ Council on Health Care, and author of the report.
Most States do not require parent consent for newborn genetic testing or for government retention of newborn genetic test results and baby DNA. Some States have now begun to retain each baby’s test results and DNA indefinitely for research. Most parents have no idea that government is doing the testing or retaining the data and DNA.
The new CCHC report begins with two quotes, the first from a December 2008 report, The Changing Moral Focus of Newborn Screening: An Ethical Analysis by The President’s Council on Bioethics and the second from Frederick Osborn, the former president of the American Eugenics Society, who wrote in 1946:
“Population, genetics, psychology, are the three sciences to which the eugenist must look for the factual material on which to build an acceptable philosophy of eugenics and to develop and defend practical eugenics proposals” (taken from War Against the Weak, New York Times-besting selling author, Edwin Black). “It is important for policymakers to look beyond the current newborn screening programs which test infants for only 21 to 60-some rare genetic conditions. Supporters of newborn screening appear to be planning for full genomic scans on every baby at birth,”said Brase.
Citizens’ Council on Health Care supports freedom for patients and doctors, medical innovation, and the right to a confidential patient-doctor relationship.
Okay the first thing you need to know is the technology is a double-edge sword it could be used for harm and for good.
Now with that in mind read the article again.
What they are outlining here is if the screening technology falls off the good side and now I´ll give you the good side.
We screen all our newborns with the parents consent of course, the parents get to know if there kids have any genetic abnormality’s and what to do to treat them.
The DNA is destroyed because it has no further use, the files are put in with the patients other medical papers and stored in a safe place so that only doctors can look at them.
Nothing will go to research without the parents direct written consent and the corporations can go fuck themselfs.
That is how you use the screening technology for good and a ban on screening will just hurt our technological advances.
Anyone disagreeing with me on this one?